Still Waiting...

                       It is now Monday and we are still working on getting information and scheduling testing for the possible Brugada syndrome. This process has been so much more complicated than I ever imagined it being. I found out that getting the Genetic blood work done will take it going through four different labs before it can get to a lab that can properly diagnose it, in addition to that we then have to wait eight weeks for the results. When it comes to the specialized ECG and EKG tests there is a specialist in Rochester that may be able to preformed the necessary tests, but he has never worked with this disease before. I also learned that the doctor that worked directly with my cousin who was diagnosed wants to see me herself. At first I was under the impression that she was in Philadelphia and that she would be able to do all of the tests for me right there. But I later learned that the week we would be able to go down she would be located in New Jersey without the ability to preform all of the tests I would need. The other possibility is to work with another Dr. who also worked with my cousin and the family who would be testing my Grandpa that same week. If that works out, we should be able to go down next week and get all of the tests done right there. So it really comes down to two options: either go down to PA and work with the Dr. who can do all of the tests I need and get it all done around the same time, or stay here and try to work with the specialist here. If Alex and I stay in New York to do the test the process may take longer, but we won't have to travel and we can schedule the tests accordingly. We are praying for wisdom right now in the process.

                 Needless to say this past week was beyond exhausting and emotionally trying. We have both really struggled with trusting God in our situation, but yesterday I think we finally came to a point where we could just breathe and let go of some of the worry and tension. When it comes down to it, we have no valid reason to worry or stress over the situation before God, because He is in control and our prayers do not go unheard. Faith. Everything comes down to faith. We who are so hopeless fail so often to rest in the confidence of God's almighty power, grace and mercy.

                To help relieve some of the stress and anxiety we went Mini-Golfing and Go-Karting. It was my very first experience ever with a Go Kart. It was incredible. I do believe I could be a race car driver someday. And for anyone who would care to take note: never play mini Golfing with Alex or myself! If you don't get hit with the ball, you will endure countless actions of cheating. We win...unfairly. It is a sad reality. We shared a lot of laughs, played in the arcade like little kids again, and listened to our favorite Pastor the whole way there and back. It was defiantly worth the drive!


Thank you so much to everyone who has been praying for us and encouraging us through these last few months. It has been a very long year so far and I don't know where we would be without all of the love and encouragement from our friends and family!